Ventured through the storm to the doctor's office and had to wait for her to get there. But she had my biopsy results. Kind of a good news/bad news scenario.
It's not vasculitis (yeah!). However, the nerve was abnormal (boo!) It is delaminating, which is not a good thing, so we have to figure out why and if it is treatable.
This moves us out of the realm of rheumatology (joints) and into neurology. So she had the name of someone she said is a very good neurologist, in Newark of course. And it takes forever to get an appointment, of course.
But, she had better news about the rheumatoid arthritis, now that she knows the foot issue is seperate. She thinks it's probably Ankylosing spondylitis, which is a less severe form concentrated in the lower back, so we don't need to be aggressive on treatment until we know what's going on with the neurologist, and she does want a CAT scan of my back but see the neurologist first.
So, more doctors and appointments, and more unknowns, but is it better or worse than vasculitis? Hard to say. Or rather, I'll keep you posted.
1 comment:
Hmmm. It's progress at least, and hopefully in the right direction. I'm glad it's not all RA, but we'll see what it means about the nerves! Definately keep us posted.
Post a Comment